LGBTQ Migraine Care Disparities

Day 6 (2023)

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Key Questions

Why do an estimated 50% of LGBTQ people experience migraine?
Are there healthcare shortfalls or disparities within the LGBTQ community?
Why is it important for patients in the LGBTQ community to discuss migraine when seeking care for other issues, such as hormone therapy or HIV treatment?
Do concerns about stigma or discrimination prevent people in the LGBTQ community from seeking routine medical care?
Why is it important for medical providers to affirm patients’ relationships and identities?
How does trauma affect people in this community who have migraine disease?
What mental health challenges do people in the LGBTQ community experience?
How can migraine patients in the LGBTQ community advocate for, and be encouraged to seek out, better treatment?
What do patients in the LGBTQ and chronic illness communities have in common?
Why is it important for those in less visible groups — such as people of color and men who experience migraine — to be adequately represented when it comes to treatment?

Interview Notes

Disparities Across Sexual Orientation in Migraine Among US Adults
Migraine, Migraine Disability, Trauma, and Discrimination in Sexual and Gender Minority Individuals
Global Healthy LIving Foundation (GHLF)
Talking Head Pain podcast on Apple and on Spotify
Talking Head Pain website

Treatments Mentioned

Exercise
Hormone therapy

Please note: The Migraine World Summit’s aim is to bring you a variety of perspectives and expertise, independent of bias or judgment. Alternative theories presented in this video have not been medically reviewed. Views expressed in this interview do not necessarily represent the views of the Migraine World Summit. Please always consult your health care professional and do your own research before making changes to your treatment plan.

Expert

Joe Coe

Director, Education & Digital Strategy
Global Healthy Living Foundation

Joseph Coe, MPA, is the director of Education and Digital Strategy for the Global Healthy Living Foundation (GHLF) and co-president of GHLF Canada. In addition to his management responsibilities, he creates global digital strategy — including social media, video, and podcasts — for patient education, advocacy, research, and support initiatives. Joe is responsible for the successful #CreakyChats monthly Twitter chat that reaches an average 11 million people per chat in the chronic disease community. In addition, he leads the growth and development arm of the GHLF’s patient-centered neurology projects, including those relating to migraine disease.

A founding board member of the Phyllis B. Frank Rockland County Pride Center, Joe serves as vice chair of the board and chair of the LGBTQ health committee. He is also a member of the Village of Haverstraw, New York, planning board where he helps guide appropriate land use. Additionally, he is a board member of the Helen Hayes Hospital Foundation, which supports a leading rehabilitation hospital in New York.

He created and hosts the GHLF’s migraine and headache podcast Talking Head Pain, and he has been a featured panelist and speaker for major healthcare organizations and Fortune 500 companies on such topics as patient centricity and healthcare disparities.