Learning the Full Impact of Migraine Through Patient Voices

Interview Notes

Find out more about Rebecca Erwin Wells, MD, MPH, FAHS and her work here:

No Treatments Mentioned

Please note: The Migraine World Summit’s aim is to bring you a variety of perspectives and expertise, independent of bias or judgment. Alternative theories presented in this video have not been medically reviewed. Views expressed in this interview do not necessarily represent the views of the Migraine World Summit. Please always consult your health care professional and do your own research before making changes to your treatment plan.

When Nothing Works: Treatment-Resistant Chronic Migraine

Interview Notes

Find more about Amaal Starling, MD and her work here:

Treatments Mentioned
  • Botox injections
  • CGRPs
  • Cognitive behavioral therapy
  • Injectables
  • Meditation and mindfulness techniques, such as progressive muscle relaxation
  • Neuromodulation devices
  • SEEDS (Sleep hygiene, Exercise regularly, Eating healthy and less processed food, Drinking water and preventing dehydration and Stress management)
  • Topiramate
  • Triptans

Please note: The Migraine World Summit’s aim is to bring you a variety of perspectives and expertise, independent of bias or judgment. Alternative theories presented in this video have not been medically reviewed. Views expressed in this interview do not necessarily represent the views of the Migraine World Summit. Please always consult your health care professional and do your own research before making changes to your treatment plan.

True Resilience: How a Paralympian Wins With Migraine

Interview Notes
Treatments Mentioned
  • Essential oils
  • Exercise
  • Sleep

Please note: The Migraine World Summit’s aim is to bring you a variety of perspectives and expertise, independent of bias or judgment. Alternative theories presented in this video have not been medically reviewed. Views expressed in this interview do not necessarily represent the views of the Migraine World Summit. Please always consult your health care professional and do your own research before making changes to your treatment plan.

Chronic Cluster Headache

Interview Notes

Find more about Christopher Gottschalk, MD, FAHS and his work here:

Treatments Mentioned
  • Beta blockers
  • CGRP monoclonal antibodies
  • CGRP oral treatments
  • Depakote
  • Eptinezumab (Vyepti)
  • Lithium
  • Nasal sprays
  • Nerve blocks
  • Oxygen
  • Psilocybin
  • Steroids
  • Sumatriptan injections
  • Topamax
  • Vagal nerve stimulator (neuromodulation device)
  • Verapamil
  • Zolmitriptan nasal sprays

Please note: The Migraine World Summit’s aim is to bring you a variety of perspectives and expertise, independent of bias or judgment. Alternative theories presented in this video have not been medically reviewed. Views expressed in this interview do not necessarily represent the views of the Migraine World Summit. Please always consult your health care professional and do your own research before making changes to your treatment plan.

Understanding The Genetics of Headache

Interview Notes

Find out more about Lyn Griffiths, PhD and her work here:

No Treatments Mentioned

Please note: The Migraine World Summit’s aim is to bring you a variety of perspectives and expertise, independent of bias or judgment. Alternative theories presented in this video have not been medically reviewed. Views expressed in this interview do not necessarily represent the views of the Migraine World Summit. Please always consult your health care professional and do your own research before making changes to your treatment plan.

Men with Headache Disease

Key questions:
  • Which headache disorders affect men the most? 
  • Cluster headache may affect more men than women, but are there actually more men who have migraine than cluster headache?
  • Are there any other headache conditions that are prominent in men?
  • How well do men cope with a headache disease?
  • What do men do instead?
  • Why is “manning up” the wrong approach?
  • 80% of men have declared that they would seek professional help for backache or insomnia but only 40% would seek medical help for headache (Kluwer-Trotter and Lian, 2012). Why should men care about getting diagnosed?
  • How might someone be putting their child at risk if they aren’t getting diagnosed or treated?
  • Do we know the likelihood that a child will inherit migraine from their father? (i.e. 50%, 25%?)
  • According to Migraine Buddy data, men are 43% more at risk than women of progression from episodic to chronic.
  • Are men who experience frequent headache or migraine attacks likely to have other health issues?
  • What has the research found about men with migraine and heart attack and stroke risk? What’s the level of absolute risk?
  • How can headache disease affect men in their careers and as a parent?
  • Can children and men who have had one or more concussions be at a greater risk for migraine?
  • How should we evaluate whether to let our children play high-contact sports?
  • What’s the bottom line? Final thoughts?
Interview links:

[Sponsored] Is the Gut-Brain Connection at the Heart of Oral Migraine Treatment Failure?

Note: This is a sponsored presentation from Impel Pharmaceuticals.

Key Questions
  • Why do some oral treatments fail to provide consistent relief?
  • How are migraine and the gut related?
  • Other than nausea and vomiting, what other gastrointestinal symptoms are associated with migraine?
  • What is gastroparesis?
  • How do the gastrointestinal issues associated with migraine affect oral treatment?
  • What does the American Headache Society recommend for patients with nausea or vomiting?
  • What is the most effective way to treat migraine without pills?
  • When should people with migraine consider a non-oral treatment?
Interview Notes

Highlights Webinar 2021

Webinar AGENDA

  • Review and summary of findings from this year
  • Surprise statements or explanations from doctors
  • Practical tips and takeaways that you can start applying today
  • Behind the scenes look at additional resources and tools available
  • Open Q&A live with the audience
  • A surprise announcement

Presentation time runs for 1 hour and 20 mins. Q&A with the audience runs for 40 mins.

Watch the Webinar Replay (Replica) >>

  • This is a replica of the live event including comments, questions and chat
  • You will be prompted for your name and email for this replica replay
  • If you prefer, you can watch just the video recording above without chat or interaction functionality

Background

The 2021 Highlights Webinar is an interactive session with plenty of opportunities for you to interact with the hosts of the Migraine World Summit.

Coming together as a community in this way is a great opportunity for us to connect in these times of isolation. We hope you’ll find this webinar provides some answers and inspiration to help you towards a life with less pain.

The webinar will also include highlights from the experts, practical tips, and takeaways with some of the most important insights from this year’s Summit. In addition, we have a special announcement that is made during the live webinar!

We’re excited to connect with you. Don’t miss this jam-packed webinar!

Unlocking the Mystery of Migraine Pathogenesis

Key Questions
  • What do pathogenesis and pathophysiology mean, specifically for migraine?
  • What is the concept of a migraine pathway?
  • Could understanding your migraine pathway help with specialized treatment?
  • What is the trigeminal pathway?
  • What role does serotonin play in migraine?
  • What role does dopamine play in migraine?
  • What is the GABA pathway?
  • What is the vascular pathway?
  • Does vasodilation cause migraine?
  • What is the anti-inflammatory pathway?
  • Is migraine a neuroinflammatory disorder?
  • Do migraines evolve over time in patients?
  • How does understanding migraine pathways lead to better understanding of migraine?
  • How does better understanding of migraine help patients and treatments?
Interview Notes

Fighting Migraine With Food and Nutrition

Key Questions
  • What nutrients or foods that are good for the brain are also good for preventing migraine?
  • How do the CGRP medications affect inflammation in the body?
  • What are some examples of key nutrients that are beneficial to the migraine brain?
  • How familiar are most doctors and health care providers with the concept of using food as medicine?
  • What are some good food sources of magnesium?
  • What are omega-3’s, and in which foods can they be found?
  • Are eggs that are fortified with omega-3’s worth incorporating into our diets?
  • What is riboflavin, or vitamin B2, and in which foods can it be found?
  • Can’t people just get the beneficial nutrients, like magnesium, riboflavin and the omega-3’s, from supplements?
  • Where can the less healthy omega-6’s be found?
  • What advice do you give patients who have anxiety about foods that might be migraine triggers?
  • How does your DREAMS acronym — which stands for Diet, Respirations, Exercise, Altruism, Mindfulness, and Sleep — empower people with migraine to get better control of the disease?
  • Why do you believe altruism is important to a person’s sense of well-being?
  • What are some examples of altruism you’ve been seeing during the pandemic?
Interview Notes

How Your Gut and Sleep Affect Migraine

Please note: The Migraine World Summit’s aim is to bring you a variety of perspectives and expertise, independent of bias or judgment. Alternative theories presented in this video have not been medically-reviewed. Views expressed in this interview do not necessarily represent the views of the Migraine World Summit. Please always consult your healthcare professional and do your own research before making changes to your treatment plan.

Key Questions
  • How does sleep affect the brain?
  • What kind of information does a sleep study reveal?
  • Why is REM sleep important?
  • How common is sleep dysfunction in today’s world?
  • How does sleep affect migraine?
  • What are some of the effects of improved sleep?
  • How do you know whether symptoms like fatigue or brain fog are symptoms of migraine, or medication side effects?
  • How can people with migraine improve their quality of sleep?
  • What role do vitamins play in both sleep and pain?
  • What role does gut bacteria, or your microbiome, play in migraine and sleep?
  • Can better sleep be as simple as finding the right dose of Vitamin D?
Interview Notes

COVID in the Real World

Key Questions
  • What did the data from the Headache and Migraine Policy Forum (HMPF) survey say about the impact of COVID on our overall health?
  • What impact is the pandemic having on the frequency of people’s migraine attacks?
  • What effect is the pandemic having on our stress levels?
  • How has the isolation that came with the pandemic affected migraine comorbidities?
  • How many people in the survey reported some level of fear or anxiety about getting migraine care during the pandemic?
  • Are people avoiding the ER for migraine emergencies during the pandemic?
  • What alternatives are people seeking for migraine emergencies?
  • How is telemedicine being received by people with migraine?
  • Why are some people with migraine hesitant to use telemedicine?
  • How is COVID affecting people with migraine in the workplace?
  • What resources are available for people with migraine struggling to hold down a job?
  • What does HMPF do and how does it benefit people with migraine?
  • How can someone get involved in advocacy and effecting policy for people with migraine?
  • From an advocacy standpoint, what has changed in the migraine community that makes managing migraine easier, particularly during the COVID era?
Interview Notes