Advocacy, Access & Migraine at Work
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Key Questions
- ¿Cuál es la misión de The Migraine Trust, en qué países opera y cuáles son sus principales áreas de enfoque?
- ¿Qué es la defensa del paciente y por qué es importante?
- ¿Qué pasos pueden tomar los pacientes para abogar por sí mismos?
- ¿Qué desafíos enfrentan los pacientes al acceder a tratamientos para la migraña en el Reino Unido, especialmente en términos de obtener medicamentos que apuntan a CGRP?
- ¿Cuáles son las prioridades de The Migraine Trust en términos de cambiar políticas y discutir el cuidado de la migraña con el gobierno?
- ¿Cómo pueden las personas en el Reino Unido apoyar los esfuerzos de The Migraine Trust?
- ¿Cómo ha sido afectada la carga de la migraña por el aumento de los costos y los eventos mundiales?
- ¿Cómo afecta la migraña a las personas en el trabajo y qué se puede hacer para mejorar el apoyo en el lugar de trabajo?
- ¿Dónde pueden las personas aprender más sobre The Migraine Trust y su trabajo?
Interview Notes
- The Migraine Trust
- Coalition of Headache and Migraine Patients (CHAMP)
- Study: “Dismissed for too long: The impact of migraine on children & young people”
- The Migraine Trust article: “Research Reveals That Over a Third of People Have Experienced Discrimination at Work Because of Their Migraines”
- Report: “The State of the Migraine Nation: What Is the Impact of Migraine in the U.K.? Rapid Research Review”
- The Migraine Trust toolkits
- The Migraine Trust: Get involved
- Harvard Business Review article: “Migraines Are a Serious Problem. Employers Can Help”
Treatments Mentioned
- Atogepant (Qulipta, Aquipta in the U.K.)
- CGRP monoclonal antibodies (mAbs)
- CGRP small-molecule receptor antagonists (gepants)
- Rimegepant (Nurtec, Vydura in the U.K.)
- Ubrogepant (Ubrelvy)
Please note: The Migraine World Summit’s aim is to bring you a variety of perspectives and expertise, independent of bias or judgment. Alternative theories presented in this video have not been medically reviewed. Views expressed in this interview do not necessarily represent the views of the Migraine World Summit. Please always consult your health care professional and do your own research before making changes to your treatment plan.
Rob Music
Chief Executive
The Migraine Trust, London
Rob joined The Migraine Trust as chief executive in February 2021 and through positive collaborations is determined to see improvements in migraine care, treatments, and access for people living with migraine. Rob has over 30 years of experience working for healthcare charities, starting out as a fundraiser, and before his current position, he held similar roles at Jo’s Cervical Cancer Trust and Endometriosis U.K. He brings a range of skills, including implementing organizational growth and development, public affairs management, service development, health and policy influence, fundraising, and media and communications.
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Related Talks for: Day 5 (2024)
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The Migraine Trust is dedicated to helping people affected by migraine. We are the only UK migraine charity providing information and support, campaigning for awareness and change, and funding and promoting research.
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